23 signs you grew up with ehlers-danlos syndrome

23 signs you grew up with ehlers-danlos syndrome

Growing up with Ehlers-Danlos Syndrome (EDS), a rare genetic connective tissue disorder, can present unique challenges and experiences. While EDS manifests differently in each individual, here are 23 signs that you may have grown up with EDS:

1. **Joint Hypermobility:** You noticed early on that your joints were unusually flexible, allowing you to perform contortionist-like maneuvers.

2. **Chronic Pain:** You experienced chronic joint and muscle pain, often starting from a young age.

3. **Bruising Easily:** Minor bumps and grazes resulted in extensive bruising that seemed excessive compared to others.

4. **Frequent Dislocations:** Your joints frequently dislocated or subluxed (partially dislocated), causing discomfort and instability.

5. **Stretchy Skin:** You have hyperelastic or velvety skin that stretches excessively and may be prone to tearing or bruising.

6. **Delayed Healing:** Injuries took longer to heal than expected, and scars might be more pronounced.

7. **Digestive Issues:** Gastrointestinal problems such as irritable bowel syndrome (IBS) or gastroparesis were common.

8. **Chronic Fatigue:** You often experienced extreme fatigue that wasn’t solely attributable to physical activity.

9. **Orthostatic Intolerance:** Standing up quickly led to dizziness or fainting, indicating issues with blood pressure regulation.

10. **Scoliosis or Kyphosis:** You developed spinal curvature or other musculoskeletal deformities.

11. **Frequent Sprains:** You sprained or strained joints with relative ease during everyday activities.

12. **Easy Scar Formation:** Even minor injuries left scars that were more prominent than you’d expect.

13. **Skin Sensitivity:** You had heightened skin sensitivity, making it painful to wear certain fabrics or textures.

14. **Subcutaneous Nodules:** The formation of small, painless nodules under the skin was a common occurrence.

15. **Widened Scars:** Surgical scars tended to widen over time, potentially leading to complications.

16. **Frequent Dislocations:** You had frequent joint dislocations, which sometimes required medical intervention.

17. **Hypermobile Fingers and Toes:** You could bend your fingers and toes in unusual ways that amazed or freaked out your friends.

18. **Joint Stiffness:** Contrary to the hypermobility, you often experienced joint stiffness, especially in the morning.

19. **Skin Fragility:** Your skin was fragile and prone to tearing, especially in areas prone to friction.

20. **Difficulty in Finding Supportive Footwear:** Finding comfortable and supportive shoes was always a challenge due to your foot shape and joint issues.

21. **Exercise Limitations:** You had to modify or avoid certain types of exercise and sports to prevent injuries.

22. **Medication Management:** You relied on medications to manage pain, inflammation, or other EDS-related symptoms.

23. **Supportive Community:** You sought support from online or in-person EDS communities, connecting with others who shared your experiences.

Growing up with EDS can be challenging, but it also fosters resilience, empathy, and a unique perspective on life. It’s important to work closely with medical professionals to manage the condition effectively and seek support from communities that understand the journey of living with Ehlers-Danlos Syndrome.

Chris Franco

Chris Frango is a highly accomplished owner and writer in the dynamic world of sports, gambling, and gaming. With an unwavering passion for these industries, Chris has carved out a niche for himself as a respected authority, delivering engaging content that captivates readers worldwide. As the owner of a popular news website, Chris has demonstrated exceptional leadership and entrepreneurial skills. His visionary approach has transformed his platform into a go-to destination for enthusiasts seeking comprehensive coverage, expert analysis, and insightful commentary on the latest developments in sports, gambling, and gaming. Chris's journey into the realm of sports, gambling, and gaming began at a young age when he discovered his insatiable curiosity for these captivating arenas. Fuelled by this passion, he embarked on an academic path that allowed him to acquire a deep understanding of the inner workings of these industries. Armed with extensive knowledge, Chris dived into the world of writing, channeling his expertise into engaging narratives that resonate with his readers. With a keen eye for emerging trends and a commitment to delivering accurate information, Chris has earned a reputation as a trusted source for industry updates and analysis. His articles offer invaluable insights into the ever-evolving landscape of sports, gambling, and gaming, catering to both casual enthusiasts and seasoned professionals alike. Beyond his exceptional writing skills, Chris's personable approach and commitment to authenticity set him apart. He recognizes the importance of fostering a genuine connection with his audience, and he continuously strives to build a community that shares his passion and values. In addition to his professional endeavors, Chris actively participates in industry events and conferences, where he engages with industry leaders and expands his network. This constant engagement ensures that he stays at the forefront of the latest developments, enabling him to deliver up-to-date and cutting-edge content to his readers. Chris Frango's dedication to his craft, combined with his entrepreneurial spirit and unwavering passion, has positioned him as a trailblazer in the world of sports, gambling, and gaming journalism. As he continues to lead his news website to new heights, he remains committed to providing his readers with compelling stories, insightful analysis, and a glimpse into the exciting future of these vibrant industries.

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